Prescription medicine is a subject of much debate among mental health patients. Some view it as an unnecessary addiction with zombie-like side effects, while others consider it a lifeline to calm and their only chance of recovery. I have been told that no one, including Psychiatrists, knows precisely how this class of drugs works. It’s not as simple as replacing a chemical deficiency in the brain, as we are sometimes led to believe. Moreover, each drug has its benefits and possible side effects.
Many people have managed their depression through lifestyle changes and natural remedies. If this works for you, keep doing it. I’m not trying to persuade anyone to take psychiatric pharmaceuticals. Likewise, if you need medication, don’t consider it an admission of failure; that you are somehow less of a person because you need it. Medication has nothing to do with strength; it is more about symptoms and relief. Find what works for you.
I have not taken many prescription medications in my life. In fact, prior to the last seven years, I had only ever been prescribed antibiotics. So when my Family Doctor first suggested medication to manage my depression, I was a little taken aback. Was I really that sick? I hesitated for a few weeks but quickly found my symptoms were becoming unmanageable. In the end, I trusted her judgment.
The first drug we tried didn’t go well. To make matters worse, I didn’t tell my family doctor about the side effects I was experiencing; I had terrible stomach cramps but did my best to persevere. I didn’t realize that had I reported my side effects right away, she would have changed the medication immediately. I thought I was being heroic when, in fact, I was just being stupid.
I went away for the weekend and forgot to bring along my psychotropic medications. The first day and first night were fine. I barely recognized a difference. But on the second day I felt off. My brain was light-headed. I had a mild headache. I lost my appetite. Nothing terrible, just off.
It was on the second night, the time when I normally take my strongest medication - the one for which I undergo monthly blood tests - that the terrors broke free. Dark and shapeless shadows, long and stretched were chasing me down a long corridor that had no end. No matter how fast I ran I couldn't get away. I tried to scream out but I couldn't make a sound. I tried a second time. I screamed louder and broke through the dream. I found myself screaming in real life. On a number of occasions over the night my wife woke me up because I was so loud.
It took a day or two after restarting my meds for things to feel back to normal. The night terrors ended immediately. At least now I know what will happen if I stop my medication all at once again. I suspect the third day and night would have be worse, the shadows would begin to pursue me under the daylight and the demons would devour me beneath the moon.
.
I live with
depression and chronic suicide ideation. Over the years I have tried
many different medications and I have experienced many different side
effects, everything from dry mouth to a brain fog. It took a while
and a lot of faith in my doctor's intentions to continue following a
path of trial and error. All along I insisted that the positive
effects of any medication had to greatly outweigh any negative
reactions. I was not going to take medication strictly for the sake
of taking medication. It had to work.
The following are the 5
worst side effects I experienced on my mental health medication
journey.
5. Vivid dreams and brain sparks. Any time I laid
down I would instantly be caught up in an all consuming, vibrant
coloured, hyper-realistic dream. And when I wasn't asleep there were
random lighting flashes behind my eyes or, as I called them, brain
sparks. While I found these side effects fascinating I was worried
they were a symptom of some hyper brain activity that over time might
cause permanent damage.
4. Deep sleep. This one was more of a
nuisance than anything. I would sleep so deeply that I would
frequently wet the bed. I also drooled on my pillows, experienced
night sweats and snored. A real treat for my wife. I ended up
sleeping in my own bedroom in the basement separate from the rest of
the family. It was embarrassing and depressing. My self esteem
plummeted. For a time I wore adult diapers to bed and washed my
bedding every morning. My drool would soak straight through my
pillows and would leave a musky odour. For me, living this way was
not an option.
3. Loss of sexual desire. This was not a
performance issue that could be addressed by Viagra or Cialis.
Believe me, I tried. Rather it was one of desire, or worse. Intimacy
never even crossed my mind. Interest in physical contact vanished. I
was chemically castrated. Provocative images, words or sounds no
longer inspired me. It was as if desire had never existed. What made
it even worse was that I didn't even realize what I had forgotten
until I purposely stepped back and thought about it. I felt cheated.
2.
Over eating and rapid weight gain. For my entire life weight has
never been a problem. I was very lucky. If I gained weight over
Christmas from all the treats and chocolates and nuts, I could easily
lose it all by mid-January by simple eating sensibly. I had never had
to diet. But when I went on one particular med I gained 25 pounds
seemingly over night. I suddenly had a middle age “beer belly”
distending over my waistband. I hated what I saw in the mirror and
felt embarrassed to go swimming. This side effect was devastating. It
took me a very long time just to claw back half of what I gained. My
body image still suffers.
1. Lethargy. The worst side effect
I experienced was when I was left sluggish and apathetic. Everything
was heavy. Lead courses through my veins. When I tried to speak
oftentimes I could not find the words. My brain was filled with
cotton batting. My short and long term memory struggled. This side
effect was worse than the disease. Sure, it stopped my emotional
swings, my anxiety and suicide ideation but all it left was a shell.
It was not a side effect. It was replacing one disease with another.
What was the point? I did not stay on this med for long.
Every
mental health medication has the potential to produce a wide range of
side effects. But they can also provide real relief. If you want to
try medication understand it will take time to determine the dosage
and drug combinations that work best for you. Be patient. Tell your
doctor any side effects you experience and work together to improve
your mental health.
I
still live with some side effects in varying degrees, but none of
them are severe. Am I cured? No. I am still in therapy, I still take
my meds but at least now a somewhat normal life seems possible.
I suffer from chronic Suicide Ideation which at times becomes acute. In these moments of crisis, I am often asked "How can I help?" I know it is frustrating but in those moments I have no idea what to tell you. My mind is spiralling and overwhelmed. Part of me doesn't even consider suicide a problem. I have had these thoughts my whole life. They are who I am. Moreover, I am fiercely independent. I don't want to be a bother. I don't want to ask for "help". My answer will usually be, "It's OK. I'm OK."
I know you mean well but there are a number of things that only make the crisis worse. Minimizing my challenge does not help. Telling me a string of positive thoughts just betrays how little you understand. Saying "It's not that bad.", "Look on the bright side.", "You can do this." makes me dismiss your intentions. Your words and thoughts become trivial in my mind because you have no idea what you are talking about. "Don't worry. Be happy." is just a catchy song.
"Count your blessings" is also not helpful. You are just trying to change the subject. "You have so much to live for.", "Other people have it so much worse.", "Don't be so dramatic.", "You are being selfish." They are all insulting. They invalidate what I am going through. I know my thoughts are distorted but they are mine and they are stuck in crisis. At that moment, I don't care about anyone else. You suggesting that I should, tells me that you don't care about me specifically.
When you say "I know how you feel." and suggest my crisis is somehow common, you make me feel less important. I'm a failure. Clearly others have handled this. Why can't I? My thoughts will then become defensive. My SI is not like everyone else's.
The desperate appeal of "I would be devastated if you were gone." also invalidates my own experience. Now I don't only have to think of my own consequences but yours as well. You are guilting me into staying alive. My crisis turns to anger and resentment. It amplifies my distress. I can barely take care of myself and now you're dumping your happiness on me.
Telling me to think of my children, my wife, my extended family only makes me angry. They are already always in my thoughts. I know they will be devastated if I die by suicide. I know it will change their lives forever. Accusing me of neglect is not helpful. Instead you only heighten the guilt I am already feeling. I'm already ashamed of my disease. Your accusation justifies why I should die. Does it make logical sense? No. But that is the inevitable path my thoughts will take. I will shut down and not listen to your words.
Don't ask me for reasons to live. In crisis, there are none. The more you push the more I will dig in. We are not dealing with logical thoughts. Everything is jumbled and hyper-focused on distress and its relief by suicide.
Asking if I have been taking my medication feels like an accusation. It undermines my own emotions. It blames me for the crisis. The dark thoughts are not real. Rather they are just a chemical stew that has boiled over. For the record, I have never missed a dose of medication. The mere suggestion is enough to make me shut you out.
Also, don't tell me to call a help line. If you are there during my crisis that is not by coincidence. I have chosen you to witness me in a very vulnerable moment. I trust you. I understand why you would want me to reach out to professionals but by telling me to do so in that moment you are abandoning me, at least that is how it feels. Similarly asking for my safety plan is dismissive. If you are there, you are already part of my plan.
So, what can you do?
First off, stay quiet. Listen. Be there for me. Let me know I am not alone but don't try to talk me down. The more words you use the less I'll listen. Conversation only amplifies the agitation. Don't bombard me with questions or try to engage me in some sort of verbal distraction. Changing the subject is not helpful. I will just hide deeper in the crisis and put up my usual defences. I will quickly say "I'm fine." in the hope that you will leave me alone.
Demonstrate empathy not judgment. See if there is a way to give me more time, to free up my schedule and relieve external pressures. Is there an upcoming event or appointment or do I have to go to work soon? Is there a way I can cancel or phone in sick? Simplify my day.
Stay with me or arrange for someone to stay with me. I'm not looking for a therapist at this point. Don't try to explore my psyche or uncover past traumas. I'll do that later with my actual therapist. In the moment I just need time to de-escalate on my own. Having someone there keeps me safe. I'll initiate any conversation when I am ready. Just be patient.
If you do want to say something, the most powerful words you can use are: "You are important to me." If you just say "You are important." I will dismiss you because I do not feel that way. In my mind that is hyperbole. But by adding "to me" it changes the meaning. I can't argue with what you believe. These words make me stop and think. They make me see you. They give me value that in that moment I don't realize I have.
I know it is hard to watch a loved one suffer. The most important thing you can do when I reach out for help is to be there for me. Without a word, you are more supportive than you could ever imagine. You give me value so I can breath deeply again.