I have the capacity for joybut not the confidence to embrace it.
Please don't cry. Be happy with the time we had. Use our memories as your palette and paint a beautiful dream where we're all together again. *I am safe. |
The worst part of depression is that it steals all your confidence and leaves you full of doubt and despair. |
My cure does not come from pills but rather words, not from bandages but rather thoughts. |
I absorb stress I step in before the fight begins. I'm the calm that prevents the storm. I'm the deep breath that gives perspective. I'm patience in the face of crisis. And all of this is killing me. |
I went away for the weekend and forgot to bring along my psychotropic medications. The first day and first night were fine. I barely recognized a difference. But on the second day I felt off. My brain was light-headed. I had a mild headache. I lost my appetite. Nothing terrible, just off.
It was on the second night, the time when I normally take my strongest medication - the one for which I undergo monthly blood tests - that the terrors broke free. Dark and shapeless shadows, long and stretched were chasing me down a long corridor that had no end. No matter how fast I ran I couldn't get away. I tried to scream out but I couldn't make a sound. I tried a second time. I screamed louder and broke through the dream. I found myself screaming in real life. On a number of occasions over the night my wife woke me up because I was so loud.
It took a day or two after restarting my meds for things to feel back to normal. The night terrors ended immediately. At least now I know what will happen if I stop my medication all at once again. I suspect the third day and night would have be worse, the shadows would begin to pursue me under the daylight and the demons would devour me beneath the moon.
.
The voice never stops. |
I live with
depression and chronic suicide ideation. Over the years I have tried
many different medications and I have experienced many different side
effects, everything from dry mouth to a brain fog. It took a while
and a lot of faith in my doctor's intentions to continue following a
path of trial and error. All along I insisted that the positive
effects of any medication had to greatly outweigh any negative
reactions. I was not going to take medication strictly for the sake
of taking medication. It had to work.
The following are the 5
worst side effects I experienced on my mental health medication
journey.
5. Vivid dreams and brain sparks. Any time I laid
down I would instantly be caught up in an all consuming, vibrant
coloured, hyper-realistic dream. And when I wasn't asleep there were
random lighting flashes behind my eyes or, as I called them, brain
sparks. While I found these side effects fascinating I was worried
they were a symptom of some hyper brain activity that over time might
cause permanent damage.
4. Deep sleep. This one was more of a
nuisance than anything. I would sleep so deeply that I would
frequently wet the bed. I also drooled on my pillows, experienced
night sweats and snored. A real treat for my wife. I ended up
sleeping in my own bedroom in the basement separate from the rest of
the family. It was embarrassing and depressing. My self esteem
plummeted. For a time I wore adult diapers to bed and washed my
bedding every morning. My drool would soak straight through my
pillows and would leave a musky odour. For me, living this way was
not an option.
3. Loss of sexual desire. This was not a
performance issue that could be addressed by Viagra or Cialis.
Believe me, I tried. Rather it was one of desire, or worse. Intimacy
never even crossed my mind. Interest in physical contact vanished. I
was chemically castrated. Provocative images, words or sounds no
longer inspired me. It was as if desire had never existed. What made
it even worse was that I didn't even realize what I had forgotten
until I purposely stepped back and thought about it. I felt cheated.
2.
Over eating and rapid weight gain. For my entire life weight has
never been a problem. I was very lucky. If I gained weight over
Christmas from all the treats and chocolates and nuts, I could easily
lose it all by mid-January by simple eating sensibly. I had never had
to diet. But when I went on one particular med I gained 25 pounds
seemingly over night. I suddenly had a middle age “beer belly”
distending over my waistband. I hated what I saw in the mirror and
felt embarrassed to go swimming. This side effect was devastating. It
took me a very long time just to claw back half of what I gained. My
body image still suffers.
1. Lethargy. The worst side effect
I experienced was when I was left sluggish and apathetic. Everything
was heavy. Lead courses through my veins. When I tried to speak
oftentimes I could not find the words. My brain was filled with
cotton batting. My short and long term memory struggled. This side
effect was worse than the disease. Sure, it stopped my emotional
swings, my anxiety and suicide ideation but all it left was a shell.
It was not a side effect. It was replacing one disease with another.
What was the point? I did not stay on this med for long.
Every
mental health medication has the potential to produce a wide range of
side effects. But they can also provide real relief. If you want to
try medication understand it will take time to determine the dosage
and drug combinations that work best for you. Be patient. Tell your
doctor any side effects you experience and work together to improve
your mental health.
I
still live with some side effects in varying degrees, but none of
them are severe. Am I cured? No. I am still in therapy, I still take
my meds but at least now a somewhat normal life seems possible.
I suffer from chronic Suicide Ideation which at times becomes acute. In these moments of crisis, I am often asked "How can I help?" I know it is frustrating but in those moments I have no idea what to tell you. My mind is spiralling and overwhelmed. Part of me doesn't even consider suicide a problem. I have had these thoughts my whole life. They are who I am. Moreover, I am fiercely independent. I don't want to be a bother. I don't want to ask for "help". My answer will usually be, "It's OK. I'm OK."
I know you mean well but there are a number of things that only make the crisis worse. Minimizing my challenge does not help. Telling me a string of positive thoughts just betrays how little you understand. Saying "It's not that bad.", "Look on the bright side.", "You can do this." makes me dismiss your intentions. Your words and thoughts become trivial in my mind because you have no idea what you are talking about. "Don't worry. Be happy." is just a catchy song.
"Count your blessings" is also not helpful. You are just trying to change the subject. "You have so much to live for.", "Other people have it so much worse.", "Don't be so dramatic.", "You are being selfish." They are all insulting. They invalidate what I am going through. I know my thoughts are distorted but they are mine and they are stuck in crisis. At that moment, I don't care about anyone else. You suggesting that I should, tells me that you don't care about me specifically.
When you say "I know how you feel." and suggest my crisis is somehow common, you make me feel less important. I'm a failure. Clearly others have handled this. Why can't I? My thoughts will then become defensive. My SI is not like everyone else's.
The desperate appeal of "I would be devastated if you were gone." also invalidates my own experience. Now I don't only have to think of my own consequences but yours as well. You are guilting me into staying alive. My crisis turns to anger and resentment. It amplifies my distress. I can barely take care of myself and now you're dumping your happiness on me.
Telling me to think of my children, my wife, my extended family only makes me angry. They are already always in my thoughts. I know they will be devastated if I die by suicide. I know it will change their lives forever. Accusing me of neglect is not helpful. Instead you only heighten the guilt I am already feeling. I'm already ashamed of my disease. Your accusation justifies why I should die. Does it make logical sense? No. But that is the inevitable path my thoughts will take. I will shut down and not listen to your words.
Don't ask me for reasons to live. In crisis, there are none. The more you push the more I will dig in. We are not dealing with logical thoughts. Everything is jumbled and hyper-focused on distress and its relief by suicide.
Asking if I have been taking my medication feels like an accusation. It undermines my own emotions. It blames me for the crisis. The dark thoughts are not real. Rather they are just a chemical stew that has boiled over. For the record, I have never missed a dose of medication. The mere suggestion is enough to make me shut you out.
Also, don't tell me to call a help line. If you are there during my crisis that is not by coincidence. I have chosen you to witness me in a very vulnerable moment. I trust you. I understand why you would want me to reach out to professionals but by telling me to do so in that moment you are abandoning me, at least that is how it feels. Similarly asking for my safety plan is dismissive. If you are there, you are already part of my plan.
So, what can you do?
First off, stay quiet. Listen. Be there for me. Let me know I am not alone but don't try to talk me down. The more words you use the less I'll listen. Conversation only amplifies the agitation. Don't bombard me with questions or try to engage me in some sort of verbal distraction. Changing the subject is not helpful. I will just hide deeper in the crisis and put up my usual defences. I will quickly say "I'm fine." in the hope that you will leave me alone.
Demonstrate empathy not judgment. See if there is a way to give me more time, to free up my schedule and relieve external pressures. Is there an upcoming event or appointment or do I have to go to work soon? Is there a way I can cancel or phone in sick? Simplify my day.
Stay with me or arrange for someone to stay with me. I'm not looking for a therapist at this point. Don't try to explore my psyche or uncover past traumas. I'll do that later with my actual therapist. In the moment I just need time to de-escalate on my own. Having someone there keeps me safe. I'll initiate any conversation when I am ready. Just be patient.
If you do want to say something, the most powerful words you can use are: "You are important to me." If you just say "You are important." I will dismiss you because I do not feel that way. In my mind that is hyperbole. But by adding "to me" it changes the meaning. I can't argue with what you believe. These words make me stop and think. They make me see you. They give me value that in that moment I don't realize I have.
I know it is hard to watch a loved one suffer. The most important thing you can do when I reach out for help is to be there for me. Without a word, you are more supportive than you could ever imagine. You give me value so I can breath deeply again.
The other day I had an episode of agitation. It happened on a moment. No warning. No build up. I suddenly began to pace while juggling a small ball between my hands. With each step, with each toss my thoughts spun tighter. I couldn't stop myself. I was completely absorbed in the agitation.
By happy coincidence my adult son was there. Happy for the outcome not the moment. I was embarrassed to be in such a state, so isolated in my thoughts. He had never seen me like that. I had always made sure of it. This time though, I couldn't hide.
He watched in silence for a few minutes and then reached out, "Are you alright?"
I couldn't quip my usual "I'm fine." I was in too deep to fool anyone about my mental health. I could not pretend like I usually did. I tried to breath. I tried to refocus but my state remained the same. I was forced to confess I was not doing well.
He watched me in silence as I paced. He didn't barrage me with questions or immediately try to refocus my thoughts. He didn't tell me to stop. He let me continue while making sure I knew I was not alone.
After a few minutes and a few more laps, he said "You have been working a lot lately." He went and looked at the calendar and confirmed his statement. He then suggested I take a mental health day. He offered me a solution to change the situation. He gave me permission to be agitated and offered a choice. I knew by this point I was in no position to go to work. My eyes were filled with tears. My body was stuck in seemingly perpetual motion. I tried my best to control my breathing - in for four and out for eight - through my nose out my mouth - but nothing worked.
He then walked over and explained himself, "I'll do what mom always does when I get upset." He gave me a big hug. I stopped moving. The spinning stopped. He had interrupted the agitation.
We then composed a text explaining I would not be in to work that afternoon. The agitation further subsided.
With my breathing returning to normal, he went off for a moment to call his mother (my wife) to tell her what was happening. When he came back he told me he had kept "mom in the loop." He had to go to work so we all decided (my son, my wife and myself) that it would be best if I was not alone. My wife called my in-laws and arranged for me to stay there for dinner.
I was a little bit hesitant. I didn't want to explain "why" it had happened or what they could do to help. To be completely honest I didn't want to talk about it at all. Happily my in-laws did not raise the topic of my mental health. We talked about everything but my agitation which helped me to stay calm. There were no awkward moments and for that I was truly thankful.
By the end of the day it was over. I was exhausted but safe.
I wish I could be confident in the future, that suicide was an if not a when, only a possibility not inevitable, but I can't make that jump, the gap is too large. |
I have an addiction. Not with a bottle or a needle or with lusts and desires. It's where I go, chased by my darkest thoughts, where I find relief or at least solace, where I stop and stand my ground, no longer helpless, my life in hand, where that feeling, that power washes over me, euphoria, to stand at the edge to not turn away, where eternity for a moment is mine. |
Let's get this right. I have only one chance. My children are the best of me. They embody my compassion, my patience, my humor, my smile, my kindness. I have brought them on this journey, holding their hands, guiding them, reassuring them that all will be fine Their lives have meant everything to me. I can see myself in them And I know I'll live on.
But
I can only take them so far.
Now I must go on my own path
I must go on alone. I wish I could take them further but the dark thoughts won't allow. Where I go now I must go alone. |
When you jump off the Golden Gate bridge you have 4 seconds before you hit the water. According to those few who have actually survived the jump the first 2 seconds are fine, surreal and serene, but on the third your survival instincts kick in; regret overwhelms your thoughts; your limbs flail about desperate to slow your fall. It is the third second that matters that's the barrier you have to push through; that moment that demands your resolve. Anticipate it and be ready to overcome. |
Suicide is not about life or death but rather hope or hopelessness. It rushes into the vacuum that despair leaves behind. It gives purpose when all reason is gone. It fills a moment with eternity, and gives confidence, where none belongs. It is fearless and fearsome and never betrays your weakness It celebrates your strength, your power to overcome the impulse to stop the impulse to accept and settle the impulse to live a hopeless life. It's the answer to "why bother" The remedy to despair And the only solution that resonates When all hope is gone. |
I set a goal for myself, to write one word today, nothing ambitious or profound, just one word to start again, just one word to show the way. Believe. |